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23rd Sept 2025 - I have written to the Rt Hon Liz Kendall MP and to Ofcom to raise concerns about gaps in the Government’s proposals on Data Preservation Notices (DPNs) and Coroner Information Notices (CINs). I am calling for automatic preservation of a child’s social media data, clear guidance for coroners, and stronger oversight to ensure bereaved families can access vital information.

Jools Law

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Matt, Ellen & Jools

Welcome to Jools’ Law

I'm Ellen Roome.  When my son Jools died in April 2022, I discovered firsthand how difficult it is for bereaved families to access their child’s online data. Social media companies hold vital evidence about what children see, share, and experience online; however, the current system makes it almost impossible for families or even coroners to obtain this information in a timely manner before data is lost or deleted. 

That’s why I launched Jools’ Law: a campaign to make sure children’s social media data is automatically preserved the moment a death is reported. Without this safeguard, evidence disappears, families are left without answers, and opportunities to protect other children are lost.

What is Jools’ Law?

Jools’ Law calls for:

  • Automatic preservation of children’s online data when a death is reported.

  • Release of that data to coroners, not directly to families, to ensure independence and safety.

  • Clear processes and default standards so evidence isn’t missed because coroners or parents don’t know which platforms or data types to request.

Where the Current Law Falls Short

Under the new Online Safety framework, two legal tools exist – but both have critical gaps:

  • Data Preservation Notices (DPNs): From 30 September 2025, Ofcom can issue preservation notices – but only if coroners provide details of specific services. There is no default list of platforms, so much may still be missed.

  • Coroner Information Notices (CINs): Coroners must already know which services to request data from and what to obtain.

These gaps mean:

  • Parents rarely have the devices or usernames – in most cases, the police take them on the day a child dies. This means families are not in a position to provide coroners with the information about accounts that may exist. The system, therefore, needs to function without relying on parents having access to the child’s usernames, which they may not know anyway.

  • Feeds vs searches – harmful content is often fed to children via algorithms, not just what they actively search for. Any Ofcom template for coroners must prompt them to request information on both types of content.

  • Coroners’ knowledge gap – many coroners will not be familiar with social media platforms themselves. That makes it even more critical that the Ofcom template is structured, practical, and prompts them about the types of data available.

  • Automatic preservation – I think there is a strong case for Ofcom to issue automatic Data Preservation Notices to a standard set of major regulated services whenever a child’s death is reported. This would ensure immediate preservation while relieving coroners and families of an impossible burden, and could then be supplemented by additional requests once specific accounts are identified. Quite often with children’s deaths, an inquest is opened and then suspended, creating a dangerous gap because, unless there is an automatic system in place, coroners may not be able to issue DPNs during that suspended period. In practice, this could mean that crucial data is lost in the early days following a child’s death, when time is most critical. It may be many months, potentially years, before the coroner is instructed to proceed, by which point the opportunity to preserve vital evidence may have passed. That is why any solution must ensure that DPNs are issued automatically at the point of a child’s death being reported, regardless of the status of the inquest.

My Campaign Priorities

Through Jools’ Law, I am working to change this system. My campaign focuses on:

  • Automatic preservation – so no child’s data is lost in the crucial first hours and days.

  • Standardised guidance for coroners – a clear “menu” of data categories and platforms.

  • Closing procedural gaps – so handovers between coroners and police do not result in lost evidence.

  • Parliamentary change – pushing for amendments to existing laws and new safeguards for bereaved families.

When I first launched the campaign, I started with a government petition. It needed 100,000 signatures to be debated in Parliament. Due to a sudden general election, I discovered I had just nine days to reach that goal. With the help of complete strangers who shared Jools’ story, I achieved the impossible – finishing with 126,033 signatures.

👉 Read more about the petition and debate in Parliament »

However, whilst this generated a great debate, I knew it couldn’t stop there. I went on to meet with ministers to push for Jools’ Law to be included in the Data Use and Access Bill, which at that time was working its way through Parliament. That bill went on to receive Royal Assent, but I wanted more than the limited provisions it offered. Jools’ Law must go further to truly protect children’s data and give bereaved families the answers they deserve.

I am now taking Jools’ Law back to Parliament, and I will be sharing my new plan very soon on how we can turn this campaign into real law.​

 

Why This Matters

No parent should have to fight for scraps of information about their child’s final moments online. No coroner should have to guess which platforms might hold vital evidence. And no child’s death should go unexplained because data was deleted before anyone acted.

Jools’ Law is simple:
The automatic preservation of a child’s social media data the moment a death is reported – ensuring coroners can access the truth, and families can get answers.

 

Get Involved

  • Follow me on social media #Joolslaw

  • Contact me

Alongside campaigning for Jools’ Law, I am also:

  • Challenging Jools’ inquest – I plan to apply to the High Court in London to have Jools’ inquest redone. If permission is granted, I will use the new Data Use and Access Act to demand social media companies release Jools’ data – if it has not already been deleted.

  • 👉 Read more about the High Court application 

  • Public Speaking - My next event is The Jordan Legacy's Hope for Life UK Conference 2025, Tuesday, December 2nd 9am-5pm at the Yorkshire Events Centre, Harrogate. A mix of carefully selected speakers, musicians, and performance acts will inspire an audience of more than 100 people from across the UK and overseas, leaving them filled with hope and a belief that it is possible to prevent all preventable suicides.

​     👉 Book your ticket here

  • Click or Quit campaign – I am working with 1decision to produce the “Click or Quit” campaign for children, schools and parents. It aims to equip children with the knowledge and confidence to recognise online risks and make safer choices, helping to prevent harm to themselves and others.
    👉 Read more about Click or Quit 

  • Fundraising for Papyrus – I actively fundraise for Papyrus – Prevention of Young Suicide, the UK charity dedicated to the prevention of suicide in young people.
    👉 Donate to Papyrus here

  • Bereaved Families for Online Safety – I am a member of Bereaved Families for Online Safety, a UK-based group of parents and families who have lost children or siblings to harms linked to online platforms. United by tragedy, we work together to campaign for stronger online safety laws, better regulation of tech companies, and meaningful change to protect other children and families.
    👉 Read more about Bereaved Families for Online Safety 

  • Documentary project – A documentary team is following my journey. One day, you will be able to watch the full story of my challenging fight for answers and change.

And there are other things in the pipeline that I can't make public yet, but watch this space, I will update it as soon as I can tell you more.

Timeline Chart

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If you’re feeling overwhelmed or struggling with your mental health, please remember you don’t have to go through it alone. Support is out there for whatever you might be facing, whether it’s stress, anxiety, depression, or other challenges.

You can reach out to:

For guidance on staying safe online and checking your child's internet settings

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